Cystic fibrosis - mea taumafa

Cystic fibrosis (CF) o se faʻamaʻi lamatia le ola e mafua ai le mafiafia, pipisi mucus e faaputuputu luga i le mama ma digestive ala. Tagata e iai CF e manaʻomia le 'aʻai o meaʻai e tele ai kalori ma polotini i le aso atoa.

O le pancreas o se totoga i le manava i tua o le manava. O se galuega taua o le pancreas o le faia o enzymes. O nei enzymes fesoasoani i le tino faʻasoesa ma mitiia porotini ma gaʻo. O le faʻaputuputu o ni mea lololo lololo i le pancreas mai le CF e mafai ona oʻo atu ai i ni faʻafitauli ogaoga, e aofia ai:

• O nofoa e iai isu, e manogi leaga, pe opeopea
• Kasa, fulafula, pe faʻapipiʻi manava
• Faʻafitauli ua lava le polotini, gaʻo ma kalori i meaʻai

Ona o nei faʻafitauli, o tagata ma CF ono faigata ona nofo i le mamafa masani. Tusa lava pe o le mamafa e masani, o se tagata ono le maua le saʻo lelei meaʻai. Tamaiti e maua CF e le tupu olaola pe tupu saʻo.

Nei o ni auala mo le faʻaopopoina o porotini ma kalori i le taumafataga. Ia mautinoa ia mulimuli i isi faʻatonuga faʻapitoa mai lau auaunaga faʻasoifua maloloina.

Enzim, vitamini, ma masima:

• Tele o tagata ma CF e tatau ona ave pancreatic enzymes. O nei enzymes fesoasoani i lou tino mitiia gaʻo ma polotini. O le aveina i latou i taimi uma o le a faʻaititia pe faʻateʻa ai ni mea manogi manogi leaga, kesi ma le fulafula.
• Ave enzymes ma meaʻai uma ma meaai mama.
• Talanoa i lau tautua e uiga i le faʻateleina poʻo le faʻaititia o au enzymes, faʻamoemoe i ou faʻailoga.
• Fesili i lau tautua e uiga i le inuina o vaitamini A, D, E, K, ma faʻaopopo suka. E i ai faʻapitoa faʻapitoa mo tagata ma CF.
• Tagata e nonofo i tau vevela atonu e manaʻomia se laʻititi o faʻasili masima laulau.

Mamanu 'ai:

• Ai i soo se taimi e te fia 'ai. Atonu o lona uiga o le 'ai nai tamaʻi taumafataga i le aso atoa.
• Taofi le tele o ituaiga meaai mama lelei. Taumafai e meaai mama i se mea i itula uma, pei o sisi ma masi, muffins, po o le auala fefiloi.
• Taumafai e 'ai e le aunoa, tusa lava pe na o ni nai u. Poʻo, faʻaopopo se meaʻai faʻaopoopo poʻo se susu susu.
• Ia fetuutuunai. Afai e te le fia 'aʻai i le taimi o le' aiga o le afiafi, fai le 'aiga o le taeao, meaʻai mama i le taeao o le taeao, ma aoauli au meaʻai autu.

Maua atili kalori ma porotini:

• Faʻaopopo kalisi sisi i supo, sosi, kasala, fualaʻau, palu pateta, araisa, noodles, poʻo falaoa aano o manufasi.
• Faʻaaoga susu atoa, afa ma le afa, kulimi, poʻo susu faʻatamaoʻaina i kuka poʻo meainu. O le susu faʻatamaia o loʻo faʻaopoopo i ai le paʻu susu mago leai.
• Faʻasalalau le pinati pinati luga o falaoa meaʻai pe faʻaaoga e fufui mo fualaʻau mata ma fualaʻau. Faʻaopopo pata pinati i sosi pe faʻaaogaina luga waffles.
• Faʻaopopo e le paʻu susu le polotini. Taumafai e faʻaopopo 2 sipuni (8.5 kalama) o le paʻu susu paʻu susu faʻaopoopo i le aofaʻi o le susu masani i fua.
• Faʻaopopo marshmallow i fualaʻau poʻo sukalati vevela. Faʻaopopo vine, aso, poʻo nati nati ma suka suka i sereal vevela pe malulu, pe fai mo meaai mama.
• O le sipuniti (5 g) pata poʻo le margarine e faʻaopopoina le 45 kalori i meaʻai. Faafefiloi i meaai vevela e pei o supo, fualaʻau, palu pateta, kuka vela, ma araisa. Auauna i luga o meaai vevela. O falaoa vevela, panikeke, poʻo le waffles e mitiia atili ai pata.
• Faʻaaoga kulimi oona poʻo yogurt i fualaʻau e pei o pateta, pi, kāloti, poʻo le kalama. E mafai foi ona faʻaaogaina o se teuga mo fualaʻau.
• O aano o falaoa, moa, ma iʻa e tele atu a latou kalori nai lo le taoina poʻo le tao lelei.
• Faʻaopopo faʻaopoopoga sisi i luga o leisa faʻaisa pizza.
• Faʻaopopo fualaʻu fuā fuā fualaʻau ma sisi sisi i se salati togi.
• Auauna i le sisi fale ma fualaʻau 'aina poʻo fualaʻau fou.
• Faʻaopopo kalisi sisi, tuna, shrimp, crabmeat, ground beef, diced ham poʻo fasi fasi fuamoa i sosi, araisa, kesi, ma noodles.

Egan ME, Schechter MS, Voynow JA. Fibrosis o le cystic I le: Kliegman RM, St. Geme JW, Blum NJ, Shah SS, Tasker RC, Wilson KM, eds. Nelson Tusitusiga o Pediatrics. 21 ed. Filatelefia, PA: Elsevier; 2020: mata 432

Hollander FM, de Roos NM, Heijerman HGM. O le auala sili ona lelei i taumafa ma cystic fibrosis: sili ona lata mai faʻamaoniga ma fautuaga. Curr Opin Pulm Med. 2017; 23 (6): 556-561. PMID: 28991007 pubmed.ncbi.nlm.nih.gov/28991007/.

Rowe SM, Hoover W, Solomon GM, Sorscher EJ. Fibrosis o le cystic I: Broaddus VC, Mason RJ, Ernst JD, et al, eds. Murray ma Nadel's Textbook of Respiratory Medicine. 6th ed. Filatelefaia, PA: Elsevier Saunders; 2016: mata 47.