Systemic Sclerosis (Scleroderma)

Anotusi

• Ata o le Systemic Sclerosis (Scleroderma)
• Faʻailoga o le Systemic Sclerosis
• Mafuaʻaga o le Systemic Sclerosis
• Tulaga Lamatiaga mo Systemic Sclerosis
• Faʻailoaina o Systemic Sclerosis
• Togafitiga mo Systemic Sclerosis
• Faʻafitauli ono o le Systemic Sclerosis
• O le a le Outlook for People with Systemic Sclerosis?

Systemic Sclerosis (SS)

Systemic sclerosis (SS) o se faʻamaʻi autoimmune. O lona uiga o se tulaga e osofaʻia ai le tino le tino puipuia. E faʻamamaina le soifua maloloina ona e manatu sese le tino puipuia ose vailaʻau mai fafo poʻo se faʻamaʻi. E tele ituaiga o faʻalavelave faʻafuaseʻi e mafai ona aʻafia ai tino eseese.

SS e iloga i suiga i le tino ma foliga o le paʻu. E mafua ona o le faʻateleina collagen gaosiga. Collagen o se vaega o fesoʻotaʻiga aano.

Ae o le faʻamaʻi e le gata i suiga o paʻu. E mafai ona aʻafia ai lau:

• alatoto
• maso
• fatu
• digestive system
• māmā
• fatugaʻo

O foliga ole systemic sclerosis e mafai ona aliali mai i isi faaletonu ole autoimmune. A tupu lenei mea, e taʻua ole faʻafefiloi fesoʻotaʻi.

O le faʻamaʻi e masani ona vaʻaia i tagata e 30 i le 50 tausaga le matutua, ae mafai lava ona iloa i soʻo se tausaga. Tamaitai e sili atu nai lo alii e maua i lenei maʻi. O faʻailoga ma le ogaoga o le tulaga e eseʻese mai le tasi tagata i le isi faʻavae i luga o sisitema ma totoga o loʻo aʻafia.

O le systemic sclerosis e taʻua foi ole scleroderma, alualu i luma systemic sclerosis, poʻo le CREST syndrome. "CREST" tu mo:

• calcinosis
• Le mea na tupu a Raynaud
• faʻaleagaina o le esophage
• sclerodactyly
• telangiectasia

CREST syndrome o se faʻatapulaʻa ituaiga o le faʻamaʻi.

Ata o le Systemic Sclerosis (Scleroderma)

Faʻailoga o le Systemic Sclerosis

SS ono faʻatoa afaina le paʻu ile amataga ole faʻamaʻi. Oe ono matauina lou paʻu mafiafia ma susulu eria atiina ae i lou gutu, isu, tamatamai lima, ma isi ponaivi eria.

A o alualu i luma le tulaga, oe ono amata amata ona i ai faatapulaaina gaioiga o le afaina eria. Isi faʻailoga aofia ai:

• paʻu lauulu
• kalama kalama, poʻo papaʻe papaʻe i lalo o le paʻu
• laʻititi, faʻasolo toto ala i lalo o le paʻu luga
• tiga soʻoga
• manava puupuu
• o le tale mama
• manava tata
• papala
• faigata faaumatia
• reflux esophage
• manava manava pe a uma taumafataga

E mafai ona amata amata ona e maua spasms o le toto ala i ou tamatamailima ma tamatamaivae. Ma, o ou pito e ono paʻepaʻe ma lanumoana pe a e i ai i le malulu pe o le lagona ogaoga lagona popole. O le mea lea e taʻu o Raynaud's phenomena.

Mafuaʻaga o le Systemic Sclerosis

SS e tupu pe a amata e lou tino le soona faʻateleina o collagen ma e faʻaputuputu i ou sela. Collagen o le autu fausaga porotini e fausia uma ai au aano.

E le o mautinoa e fomaʻi le mea e mafua ai ona gaosia e le tino le tele o collagen. Ole mafuaʻaga tonu ole SS e leʻo iloa.

Tulaga Lamatiaga mo Systemic Sclerosis

Mea lamatia e mafai ona faʻateleina ai ou avanoa o le atinaʻeina o le tulaga aofia ai:

• avea ma Native American
• avea ma Aferika-Amerika
• o le fafine
• faʻaaogaina o vailaʻau ole chemotherapy pei ole Bleomycin
• Faʻaalia i le efuefu silica ma soli totoʻa

E leai se auala iloa e puipuia ai le SS nai lo le faʻaititia o tulaga faʻafitauli e mafai ona e puleaina.

Faʻailoaina o Systemic Sclerosis

I le taimi o suʻega faʻaletino, e mafai e lau fomaʻi ona faʻamaonia suiga o paʻu e faʻailoga o le SS.

Ole toto maualuga e mafua mai ile suiga ole fatuga mai le sclerosis. E mafai ona faʻatonu e lau fomaʻi ia faʻataʻitaʻiga ole toto e pei ole suʻega ole vailaʻau ole toto, rheumatoid factor, ma le faʻatapulaʻaina ole faʻafefe.

O isi suʻega suʻega e mafai ona aofia ai:

• o se pusa X-ray
• a urinalysis
• se CT faʻasolosolo o mama
• biopsies o le paʻu

Togafitiga mo Systemic Sclerosis

Togafitiga e le mafai ona togafitia le tulaga, ae mafai ona fesoasoani faʻaititia faʻailoga ma faʻasolosolo lemu alualu i luma. Togafitiga e masani lava faʻavae i luga o faʻailoga a le tagata ma le manaʻoga e puipuia ai faʻalavelave.

Togafitiga mo lautele lautele auga ono aofia ai:

• corticosteroids
• tui puipuia, pei o le methotrexate poʻo le Cytoxan
• vailaʻau e le faʻaaoga e teteʻe ai i le mafaufau

Faʻamoemoeina i au faʻailoga, togafitiga e mafai foi ona aofia ai:

• vailaʻau toto
• vailaʻau e fesoasoani manava ai
• togafitiga faʻamalositino
• malamalama togafitiga, pei o ultraviolet A1 phototherapy
• nitroglycerin uu e togafitia ai nofoaga faʻapitonuʻu o le faʻamaʻaina o le paʻu

Oe mafai ona faia suiga olaga e tumau maloloina i scleroderma, pei o le aloese mai le ulaula sikaleti, tumau faʻamalosi tino, ma aloese mai meaʻai e faʻaosofia ai loto tiga.

Faʻafitauli ono o le Systemic Sclerosis

O nisi tagata e maua e le SS le faʻasolosolo o latou faʻailoga. Faʻafitauli mafai ona aofia ai:

• faaletonu fatu
• kanesa
• faaletonu fatugaʻo
• toto maualuga

O le a le Outlook for People with Systemic Sclerosis?

Togafitiga mo le SS ua faʻaleleia atili i le 30 tausaga ua tuanaʻi. E ui lava e leai lava se fofo mo SS, e tele togafitiga eseese e mafai ona fesoasoani ia oe e faʻatautaia au faʻailoga. Talanoa i lau fomaʻi pe a fai o se tasi o faʻailoga ua faʻalavelave i lou olaga i aso uma. E mafai ona latou galulue faʻatasi ma oe e fetuʻunaʻi lau togafitiga togafitiga.

E tatau foʻi ona e fesili i lau fomaʻi e fesoasoani ia te oe e saili ni vaega lagolago mo le SS. Talanoa i isi tagata e tutusa o latou poto masani pei o oe e mafai ai ona faʻafaigofie ona feagai ma se maʻi masani.