Tofotofoga afu mo Cystic Fibrosis

Anotusi

• O le a le suʻega ole afu?
• O le a le mea e faʻaaoga ai?
• Aisea ou te manaʻomia ai se suʻega afu?
• Ole a le mea e tupu ile taimi ole suʻega ole afu?
• Mata e tatau ona ou faia se mea e sauniuni ai mo le suʻega?
• E i ai ni lamatiaga i le suʻega?
• O le a le uiga o faʻaiuga?
• E i ai se isi mea e tatau ona ou iloa e uiga i se afu suʻega?
• Faʻamatalaga

O le a le suʻega ole afu?

O le suʻega ole afu e fua ai le aofaʻi o le chloride, o se vaega o le masima, i le afu. E faʻaaogaina e suʻe ai le cystic fibrosis (CF). Tagata e iai CF e maualuga le maualuga o le chloride ile latou afu.

CF o se faʻamaʻi e mafua ai le faʻaputuputuina o le lololo i māmā ma isi totoga.E faʻaleagaina le māmā ma faigata ai ona manava. E mafai foi ona mafua ai i faʻamaʻi pipisi ma le leai o ni mea taumafa. CF o se faʻamaʻi tuufaasolo, o lona uiga ua pasi mai i lalo mai ou matua, ala i kenera.

O sene o vaega ia o DNA e faʻamatalaina ni au faʻamatalaga uiga ese, e pei o le maualuga ma le lanu o mata. O Genes e tali atu foʻi mo ni faʻafitauli tau soifua maloloina. Ina ia maua le cystic fibrosis, e tatau ona i ai sau kenera CF mai uma lou tina ma lou tama. Afai naʻo le tasi matua e maua le gafa, e te le maua i le faʻamaʻi.

Isi igoa: tofotofoga afu kaliona, tofotofoga afu afu fibrosis, afu electrolytes

O le a le mea e faʻaaoga ai?

O le afu ole suʻega e faʻaaogaina e suʻe ai le cystic fibrosis.

Aisea ou te manaʻomia ai se suʻega afu?

O le suʻega ole afu e mafai ai ona iloa ai le cystic fibrosis (CF) i tagata o soʻo se tausaga, ae e masani ona faia i pepe. Atonu e manaʻomia e lau pepe se suʻega o le afu pe a fai o ia na faʻamaonia le lelei mo le CF i se suʻesuʻega masani o le toto o le pepe fou. I totonu o le Iunaite Setete, o pepe fou e masani ona suʻesuʻeina mo le tele o tuutuuga e aofia ai le CF. Ole tele ole suʻega ole afu e fai pe a fai o pepe e 2 i le 4 vaiaso le matutua.

O se tama matua poʻo se tagata matua e leʻi faʻataʻitaʻia mo le CF ono manaʻomia se suʻega o le afu o le cystic fibrosis peʻa iai se tasi o le aiga ua maua i le maʻi ma / pe i ai faʻailoga o le CF. E aofia ai:

• Paʻu suamalie masima
• E tale masani
• O siama masani o le mama, pei o le niumonia ma le bronchitis
• Faʻalavelave manava
• Le faʻamoemoe e maua le mamafa, e oʻo lava i se manaʻo lelei
• Suauʻu gaʻoa, lapisi
• I pepe faatoa fananau mai, e leai ni nofoa i le taimi tonu na fanau ai

Ole a le mea e tupu ile taimi ole suʻega ole afu?

E manaʻomia e lau tausi soifua maloloina ona aoina se faʻataʻitaʻiga o le afu mo suʻega. O le taualumaga atoa o le a alu ai pe a ma le itula ma atonu e aofia ai laʻasaga nei:

• O le tausi soifua maloloina o le a tuʻu le pilocarpine, o se vailaʻau e mafua ai le afu, i luga o se tamaʻi vaega o le alofi lima.
• O lau 'auʻaunaga o le a tuʻuina se eletise i luga o lenei eria.
• O se vaivai vai o le a lafoina i le electrode. O lenei āu e sosolo ai le vailaʻau i totonu o le paʻu. Lenei ono mafua ai sina laititi pe mafanafana.
• A maeʻa ona aveʻese le electrode, o le a faʻapipiʻi e lau kamupani le fasi pepa faʻamama poʻo le gaʻo i luga o le lima e ao mai ai le afu.
• E faʻaputuputu le afu mo le 30 minute.
• O le afu ua aoina o le a lafoina i le fale suesue mo suʻega.

Mata e tatau ona ou faia se mea e sauniuni ai mo le suʻega?

E te le manaʻomia ni sauniuniga faʻapitoa mo se suʻega o le afu, ae e tatau ona e aloese mai le faʻaogaina o ni kulimi poʻo kulimi i le paʻu mo le 24 itula ae le i faʻatautaia le togafitiga.

E i ai ni lamatiaga i le suʻega?

E leai se lamatiaga iloa ile suʻega ole afu. Atonu e faʻalogoina se lagona o lou alo mai i le eletise, peitaʻi e le tatau ona tigaina.

O le a le uiga o faʻaiuga?

Afai o faʻaiuga e faʻaalia ai le maualuga o le vailaʻau, o loʻo iai se avanoa lelei e maua ai i lau tama i le cystic fibrosis. Lau fomaʻi tausi soifua e ono faʻatonu se isi suʻega afu ma / poʻo isi suʻega e faʻamaonia pe faʻateʻa ai se faʻamaoniga. A iai ni au fesili e uiga i faʻaiuga a lau tama, talanoa i lau fomaʻi.

Aʻoaʻo atili e uiga i suʻesuʻega falesuesue, vaitau o faʻasino, ma malamalamaaga i iʻuga

E i ai se isi mea e tatau ona ou iloa e uiga i se afu suʻega?

E ui e leai se fofo mo cystic fibrosis (CF), e i ai togafitiga avanoa e fesoasoani faʻaititia ai faʻailoga ma faʻaleleia atili le tulaga o le olaga. A faʻapea na maua lau tama i le CF, talanoa ma lau fomaʻi e uiga i metotia ma togafitiga e fesoasoani ai i le faʻatautaia o lenei faʻamaʻi.

Faʻamatalaga

1. American Lung Association [Initaneti]. Sikako: American Lung Association; c2018. Suʻesuʻega ma le togafitia o le Cystic Fibrosis [taʻua le 2018 Mar 18]; [tusa o le 4 pupuni] Avanoa mai: http://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cystic-fibrosis/diagnosing-and-treating-cf.html
2. Cystic Fibrosis Foundation [Initaneti]. Bethesda (MD): Cystic Fibrosis Foundation; About Cystic Fibrosis [taʻua 2018 Mar 18]; [pe a ma le 2 pupuni] Avanoa mai: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
3. Cystic Fibrosis Foundation [Initaneti]. Bethesda (MD): Cystic Fibrosis Foundation; Suʻega o le afu [taʻua 2018 Mar 18]; [pe tusa ma le 3 pupuni] Avanoa mai: https://www.cff.org/What-is-CF/Testing/Sweat-Test
4. Hinkle J, Cheever K. Brunner & Suddarth's Handbook of Laboratory and Diagnostic Tests. 2nd Ed, faamumū. Filatelefaia: Wolters Kluwer Soifua Maloloina, Lippincott Williams & Wilkins; c2014. Afu Tofotofoga; i. 473-74.
5. Johns Hopkins Faʻafomaʻi [Initaneti]. Baltimore: O le Iunivesite o Johns Hopkins; Faletusi o le Soifua Maloloina: Cystic Fibrosis [taʻua 2018 Mar 18]; [pe tusa ma le 3 pupuni] Avanoa mai: https://www.hopkinsmedisin.org/healthlibrary/conditions/adult/respiratory_disorder/cystic_fibrosis_85,p01306
6. Lab Tofotofoga lugalaina [Initaneti]. Washington D.C .: American Association mo Vailaʻau Togafitiga; c2001–2018. Cystic Fibrosis [faʻafouina 2017 Oketopa 10; taʻua le 2018 Mar 18]; [pe a ma le 2 pupuni] Avanoa mai: https://labtestsonline.org/conditions/cystic-fibrosis
7. Lab Tofotofoga lugalaina [Initaneti]. Washington D.C .: American Association mo Vailaʻau Togafitiga; c2001–2018. Vaʻaiga Fou Fanau [faʻafouina 2018 Mar 18; taʻua le 2018 Mar 18]; [pe a ma le 2 pupuni] Avanoa mai: https://labtestsonline.org/screenings/newborns
8. Lab Tofotofoga lugalaina [Initaneti]. Washington D.C .: American Association mo Vailaʻau Togafitiga; c2001–2018. Suʻega ole Suigi Chloride [faʻafouina 2018 Mar 18; taʻua le 2018 Mar 18]; [pe a ma le 2 pupuni] Avanoa mai: https://labtestsonline.org/tests/sweat-chloride-test
9. Merck Manual Consumer Version [Initaneti]. Kenilworth (NJ): Merck & Co. Inc. c2018. Cystic Fibrosis (CF) [taʻua le 2018 Mar 18]; [pe a ma le 2 pupuni] Avanoa mai: https://www.merckmanuals.com/home/ Children-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
10. National Heart, Lung, and Blood Institute [Initaneti]. Bethesda (MD): U.S. Matagaluega o le Soifua Maloloina ma Tagata Auaunaga; Cystic Fibrosis [taʻua 2018 Mar 18]; [pe tusa ma le 3 pupuni] Avanoa mai: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
11. Iunivesite o Rochester Medical Center [Initaneti]. Rochester (NY): Iunivesite o Rochester Medical Center; c2018. Soifua Maloloina Encyclopedia: Cystic Fibrosis Sweat Test [taʻua 2018 Mar 18]; [pe a ma le 2 pupuni] Avanoa mai: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
12. UW Soifua Maloloina [Initaneti]. Madison (WI): Iunivesite o Wisconsin Falemai ma Falemai Pulega; c2018. Soifua Maloloina Faʻamatalaga: Soifua Maloloina Mea Moni mo Oe: Pediatric Sweat Test [toe faafou 2017 Me 11; taʻua le 2018 Mar 18]; [pe tusa ma le 3 pupuni] Avanoa mai: https://www.uwhealth.org/healthfacts/parenting/5634.html
13. UW Soifua Maloloina: Falemai Fanau Fanau Amerika [Initaneti]. Madison (WI): Iunivesite o Wisconsin Falemai ma Falemai Pulega; c2018. Soifua Maloloina Tamaiti: Cystic Fibrosis [taʻua 2018 Mar 18]; [pe a ma le 5 pupuni] Avanoa mai: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
14. UW Soifua Maloloina: Falemai Fanau Fanau Amerika [Initaneti]. Madison (WI): Iunivesite o Wisconsin Falemai ma Falemai Pulega; c2018. Soifua Maloloina Tamaiti: Cystic Fibrosis (CF) Chloride Sweat Test [taʻua 2018 Mar 18]; [pe a ma le 5 pupuni] Avanoa mai: https://www.uwhealthkids.org/kidshealth/mother/general-health/sick-kids/cystic-fibrosis-(cf)-chloride-sweat-test/24942.html

O faʻamatalaga i luga o lenei 'upega tafaʻilagi e le tatau ona faʻaaogaina e fai ma sui o fomaʻi faʻapitoa togafitiga poʻo fautuaga. Faʻafesoʻotaʻi le au tausi soifua pe a iai ni au fesili e uiga i lou soifua maloloina.